Scan results tomorrow. I had the CT done Monday and am now waiting, waiting, waiting.  Rather annoyingly the imaging place uploads your films to the patient portal but not the written report. And of course the films all look sinister. I can make not hide nor hair of them. And so I wait.  I feel… Continue reading Back in the waiting place 

I’ve just celebrated my third Christmas since diagnosis. Amazing. In writing this I have realised that I no longer measure my age or the passage of time in reference to my birth, but rather to my diagnosis. A strange and rather horrible re-birth – no longer nearly 37 years old but instead nearly three. 2017… Continue reading #alternativemilestones