Since I last wrote my markers have been on a steady (but not terrifying rise). We made the decision to add the irinotecan back in to the protocol but even at its highest dose it appears I’m resistant. I had treatment on Monday and I have decided that bar some amazing scan results next week… Continue reading Lab rat time
Violet has recently been begun to grapple with the idea of death. David’s very lovely grandmother Joyce (one of Violet’s middle names) died earlier this year and after some thought we took Violet to the funeral. Violet and I also came across a dead bird while on a walk and she has been talking about… Continue reading But Mummies Don’t Die…
A strange concept to most, but something that I’ve been thinking quite a lot about over the past few years. I’ve always had a tendency to jealousy and envy and a desire to be the most favourite. It is one of the things I like least about myself and has caused me much unhappiness, particularly… Continue reading Cancer envy
Yesterday was World Cancer Day. Today I took my little girl to her first day of Reception. That I was here to do this is testament to the decades of work by researchers to develop treatments for metastatic disease. In cancer land it’s very easy to think in black and white terms – curable or… Continue reading World Cancer Day
I can quite confidently say that the month after my diagnosis was the worst time of my life. Blessedly it is now largely a blur. There are some very clear memories- things which seemed like they happened yesterday- but most of it is missing from my memory. Mostly I remember the feelings from that time… Continue reading Best Advice: Diagnosis
I’m now a few years into this cancer business and unnervingly people are starting to ask my advice for staying alive…I can remember when I was first diagnosed, desperately searching out people who were confounding a diagnosis and trying to work out their secrets. Somehow, despite the odds, it is me that is still here… Continue reading My Best advice – an introduction
This blog has been much neglected for most of 2018 and for this I’m sorry. In truth I’m trying to work out where to go with it. Life is somewhat more settled than it has been since my diagnosis and I am enjoying cancer not completely having centre stage. Since I last wrote I had… Continue reading Another year over
